Erin doing the limbo!!
Erin on a bike!!
We all had a fantastic but sad last night with the SDR families here in the hotel. It feels a little sad as our journey is coming to an end here in St Louis Missouri USA. We can not believe now how well this year has worked out for Erin & the extremely amazing results we have already seen in her after SDR. It truly will not be long now before she is walking by herself. Exciting news from the Neurosurgeon here from Leeds (John) the future plan is to have SDR available in the UK at three places but we all have to realise this will not happen over night but change is so much on the way. He seems very positive & excited about getting this treatment in the UK & on the NHS yeap the NHS along with Neurosurgeon Kristian at Bristol who is visiting Dr Park next month. He is extremely impressed with Dr Park & the whole procedure of SDR from start to finish including the physio & the hourly phone call we parents get when our children are in surgery. Dr Park has said to him that he wishes he could give them the UK patients back to the UK for the treatment. We are so excited for all those families who are up against the battle of trying to raise funds for this treatment here in the USA. Anyways Erin worked hardish at physio today. We knew she wouldn't be great as we had a bit of a late night but she still managed to impress & rode a bike. Way to go little Lady!! We have one more physio left tomorrow which she will be full rested & fighting fit for as she has gotten in an early night. All she wants to do now is go home & keeps asking if we can go now. We then caught up with our wonderful family back in the UK & hung out at the hotel. Hopefully she'll get to go swimming tomorrow after physio whilst mum finishes of the packing!! SHE SO CAN NOT WAIT TO GET ON THE PLANE HOME!!nor can we!! although we have to say we have some great memories to take home with us & met some truly wonderful people here who helped to create those memories. Gonna miss them too. xox
1 comments:
Well Erin again you have done really well.You go girl!!!! we are so impressed with all you have done and achieved since your operation,we are so proud of you.You have had such a hard time since your birth but now it will only get better, you keep going and you will be walking and running before very long. love you alway's can't wait to see you love Nan & Gramp's xoxoxoxoxoxoxox
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